„Alleine schaffe ich das nicht…“ – Bedürfnisanalyse der Angehörigen von Palliativpatienten im Entlassungsprozess aus dem Krankenhaus

Zusammenfassung

Hintergrund Die Studie untersucht die Bedürfnisse und Belastungen der Angehörigen von Palliativpatient*innen im Entlassungsprozess aus dem Krankenhaus, um diesen mit angepassten Angeboten zu verbessern.

Methodik Es wurden 10 qualitative Interviews mit Angehörigen von Palliativpatient*innen im Entlassungsprozess geführt und ein Fragebogen zu Bedarfen erhoben. Die Interviews wurden inhaltsanalytisch, der Fragebogen deskriptiv ausgewertet.

Ergebnisse Kernthemen waren: Entscheidungsfindung, Organisations- und Informationsbedarf und psychosoziale Bedürfnisse. Aus der als selbstverständlich angesehenen Pflege zu Hause resultieren Versagensängste und ein Informationsbedarf an Unterstützungsmöglichkeiten, beispielsweise der Palliativdienste.

Schlussfolgerung Informationsgespräche und -material sowie eine Einbindung in die Pflege im Krankenhaus können die Angehörigen unterstützen. Für die realistische Einschätzung der Pflege zu Hause und externe Unterstützung ist eine rechtzeitige Aufklärung wichtig.

Abstract

Background The study analyzes the needs and burdens of family carers of palliative care patients during the discharge process to improve it with adapted interventions.

Methods 10 qualitative interviews with relatives of palliative patients in the process of discharge were conducted and a questionnaire on personal needs was collected. The interviews were analyzed using content analysis, the questionnaire was analyzed descriptively.

Results The analysis of the interviews yielded: decision-making, organizational and information needs, and psychosocial needs as core topics. Care at home, which is taken for granted, results in fears of one´s own failure and a need for information about support options, for example the palliative care services.

Conclusion Informational conversations, written information and involvement in hospital care can support relatives in home care. Early education about palliative care is important to estimate care at home and support options realistically.

Schlüsselwörter

Ambulante Palliativversorgung - Angehörige - Bedürfnisse und Belastungen von Angehörigen - Entscheidungsfindung im Entlassungsprozess - Transition

Keywords

palliative home care - family caregivers - needs and burdens of family caregivers - decision making in discharge process - transition

Publication History

Article published online:
09 January 2024

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